Showing posts with label mightierthantypeone. Show all posts
Showing posts with label mightierthantypeone. Show all posts

Monday, 1 May 2017

10 things people with Type One diabetes hear all too often 1. PEOPLE WITH TYPE 1 DIABETES CAN’T EAT SUGAR – In reality people with type 1 diabetes can eat anything they want, as long as they give themselves enough insulin to cover the sugar or carbs they eat. It must be said though that sugar isn’t really good for anybody and should be eaten in moderation, but I’ll save that rant for another day. 2. TYPE 1 DIABETES IS CAUSED BY BEING OVERWEIGHT Type 1 diabetes is an auto immune disease caused by the body attacking the pancreas. It has nothing to do with weight or diet. 3. ADULTS CAN’T GET TYPE 1 DIABETES While it is more rare for an adult to get type 1, it happens. It can happen at any age. 4. KIDS WILL GROW OUT OF TYPE 1 DIABETES Well meaning friends or family members told me this when my daughter was first diagnosed. “don’t worry, she’ll grow out of it” Sadly that is not the case. She will be insulin dependent for the rest of her life. 5. TYPE 1 DIABETES IS HEREDITARY – This one is complicated. Type 1 diabetes is not hereditary. However, the autoimmune gene that can cause diabetes, as well as a number of other diseases, can be hereditary. 6. YOU GET TYPE 1 DIABETES FROM EATING TOO MUCH SUGAR Nope, nu-uh, no way. As stated in number 2, nothing that you eat will cause type 1 diabetes. Eating too much sugar can cause a tummy ache, but not diabetes. 7. PEOPLE WITH TYPE 1 DIABETES CAN’T PLAY SPORTS Ugh. I hate this one. People with type 1 diabetes can play any sports they want, there are many athletes that have type 1 diabetes such as Sir Steve Redgrave 8. THE INSULIN PUMP CURES TYPE 1 DIABETES Well meaning friend or stranger: “Isn’t she on a pump?” Me: “Yes, but…” Friend/Stranger: “Well then she is cured, right?” Nope. Not even close. The pump is an amazing piece of equipment that has made our life so much easier, but it hasn’t cured her diabetes, it will never cure her diabetes. She will always need insulin, the pump just makes delivery of that insulin easier and more accurate. 9. TYPE 1 DIABETES CAN BE CURED WITH DIET AND EXERCISE I blame Halle Berry for this one. Halle Berry was diagnosed with type 1 diabetes in 1989. In 2007, she claimed in an interview that she had weaned herself off insulin after changing her diet, pretty much curing her diabetes. Um, what? That is not physically possible, it’s a death sentence to stop insulin if you have type 1 diabetes. The fact is that Ms. Berry was possibly misdiagnosed and had type 2 diabetes all along. There is no cure for type 1 diabetes. 10. AT LEAST ITS NOT SERIOUS LIKE CANCER I have no words. Help us find a cure for Type one diabetes. http://ift.tt/2gFkUGb

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Sunday, 16 April 2017

On Instagram today, the hashtag #diabetes was high on the list of trending tags. With it being Easter, there were a lot of Easter egg posts and i just wanted to remind people of this Diabetes isn't that Easter Egg, large piece of birthday cake, or that super sized McDonald's meal with extra fries, or anything you see coated with sugar. Diabetes is an 18 year old girl sitting on her bathroom floor shaking and not able to breathe because her blood sugar dropped and praying her Mums phone is near her and she got the text message to bring some sugar since she's too weak to yell and the whole room is spinning. It's a 9 year old boy who is trying to play outside with his friends and ends up being carted away in an ambulance because he went unconscious when he didn't feel his sugar slipping. It's a 32 year old girl who FINALLY got the news that she's pregnant and going to have the family she's always wanted, but instead of celebrating like she should be she's worried to death that her blood sugars won't stay in range with all of the hormones and that it's going to kill her baby before she gets to meet it... and maybe even her. It's a 3 year old who doesn't understand why her Mummy has to stab her with a syringe every single time she eats, but not her sister. It's a 4 year old girl that I read about recently who lost her life because a doctor misdiagnosed her diabetes as the flu and she ended up a victim of diabetic ketoacidoses, where your blood literally turns acidic from the lack of insulin in your body and attacks your organs. Diabetes is your mother, your neighbour, your cousin. Diabetes isn't the morbidly obese man you see on tv. It isn't something people ask for or give themselves. It's a disease that isn't picky when it chooses who to attack, it doesn't care if you're 2 months old or if you're 73. It doesn't care if you eat Big Macs and fries every day of your life or if you're a strict vegan who goes to the gym daily. Diabetes is me. Diabetes is a bunch of people who fight for their life every single day and go to bed not sure if they're going to wake up the next morning. So before you tag your huge dessert #Diabetes, think about what #Diabetes really looks like.

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Friday, 17 March 2017

#SuperheroShoutout Finn’s Story "He’s a typical 3 year old!” everyone said. “It’s normal behaviour, don’t worry!”, they said. Was it? I didn’t quite believe what people were saying to me, I thought it was one of those things they said to try and stop mums worrying. I went with the majority verdict and got on with family life. The 3 year old? Our little boy, Finn. Finn was going through some severe mood swings, uncontrollable tempers where he would scream as though he was in pain. All apparently ‘normal’ according to the professionals. The tempers gradually became worse. He started wetting himself at bedtime and was getting infection after infection. Looking back he was probably a very poorly 3 year old, not a typical one. Finn woke up early one morning with a really bad cough and struggling to breathe. We called NHS Direct and they said to take him to A&E and get him checked over. Off we went. We got seen very quickly and they diagnosed Finn with croup. They gave him some steroid medicine and the usual Calpol. The doctor then asked “aside from the cough, how is he in himself? Going to the toilet ok?”. We mentioned the mood swings but that Finn was late in toilet training and that he was generally good at going when he needed to but at night he begun to wet the bed. The doctor asked to check his urine just to make sure there was no other infection anywhere. Finn was very willing to go ‘point Percy in a special pot’, and smiled his cheeky smile to the nurse that took it off him. It was probably only a few minutes after that when the doctor came back with the nurse holding a blood sugar monitor. It was as though he knew by looking at us that there was something else was wrong. He asked us if we’d heard of Diabetic Ketoacidosis or DKA, I knew then what he was telling us. I broke down right there and then. They pricked Finn’s finger and it read 23.8 for his blood sugar and his ketones were 7.4. I’d never heard of ketones before but we were told that in a non-diabetic, levels are normally below 0.6. Finn’s levels were extremely high and that he is classed as a medical emergency. They told us that if we hadn’t gone in when we did, he would have been in a coma within a couple of weeks. We were admitted straight away into the children’s ward and Finn had a cannula fitted ready for a drip. Finn’s grandma has type 1 so I had grown up with it but a lifetime of watching someone else cope was nothing compared to what we were about to be faced with. How do you tell your child that he’s going to have to inject himself whenever he wants to eat anything and that he will forever have to prick his finger at least 7 times a day? Finn spent almost a week in hospital adjusting to life as a diabetic. We learnt how to administer the injections, how to do the finger tests, how to recognise a hypo, what do to do if he falls into a diabetic coma and quickly learnt about all things linked to diabetes. Finn didn’t take to injections very well and was having between 6 and 8 injections a day. With this came a lot of anger and a lot of tears. Thankfully, Finn went onto pump therapy a few months and whilst this took away the fear of injections and allowed him to eat more freely like a normal child of his age, it means that he is permanently attached to his pump via a cannula and tube. Since Finn was diagnosed with Type 1 Diabetes on 14th November, a date I later learnt is World Diabetes Day, he is amazing with it and he doesn’t let it stop him doing anything. He has little breakdowns (only with us at home) fairly often and it’s not easy watching him go through it, but we do what any parent would do and try comfort him as best we can. Finn has found a love of football and Leeds United and it currently on trials with them (proud mum alert!), whenever possible he gets to go to Elland Road to watch his dream team! He’s a different child when he’s there and I’m so proud of him and the young man he is turning into. A few months ago my daughter (4 years old) and myself took part in a trial to see if either of us are likely to develop type 1 diabetes. My results came back negative, but my daughters have come back positive and we have been told that she’s basically a ticking time bomb. Not good news, but at least we are prepared and we now monitor her closely so that she won’t get poorly before diagnosis. Every cloud has a silver lining I suppose. Victoria - Finn's Mum

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Tuesday, 21 February 2017

Diabetes: Just imagine for a second…. Just imagine with me for a moment if you will. Imagine your child in front of you, and a doctor at your side. The doctor tells you that your child’s lungs are starting to give up, and within a matter of weeks they won’t work anymore. They will merely be a defunct organ inside their otherwise perfect body. Imagine the instant fear and worry. Then, stay with me. Imagine the doctor handing you a small medical device, no bigger than your hand. Then imagine him walking to your child and attaching a similar device to her body via an injection and connecting the two via bluetooth. Still here? Good, Now, finally imagine the doctor explaining that you need to be your child’s lungs from now on. That you can set the device in your hand to tell the device in her body how many times her lungs need to inhale and exhale every hour. But the device will need programming for every hour. You will need to inject her in a fresh site every two to three days, even those of you who are terrified of needles will need to become a dab hand at cannula changes. You will need to tell the device when she is exercising and will need to breathe more rapidly. It will also need to know when she is sleeping so you can slow her inhale/exhale down to a nice resting rhythm. But don’t forget if she has a nightmare she will need to breathe quicker again – how can you pre program for that. In your hands you hold your child’s new lungs – you are your childs new lungs. You need to pre plan their day, pre empt what to do when they go for a sudden dash across the playground. You need to live with the knowledge that if you get it wrong, you may be a factor in making your little loved one terribly ill. I struggle to imagine being my child’s lungs. But I am my daughter’s pancreas. I control how much insulin she has an hourly basis, I factor in how exercise will lower her blood sugars and stress will send them sky-high. I try to manage how hormones will impact on her insulin needs, and I spend most nights by her side, checking her blood sugars making sure that what I have programmed that day wasn’t wrong. That I am not a factor in causing my child to become terribly ill. Not everyone understands Type 1 Diabetes – they think it is a condition that can be controlled with time. It isn’t, it can be controlled only by a parent or eventually the child themselves. We were not made to be our children’s lungs or pancreas’, and some days the thought of acting as an organ can be rather exhaustivingly overwhelming. But it is not a choice, simply a challenge. Can you imagine being an organ? I can.

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Friday, 17 February 2017

So February is ending up being a 'rest month' First there was the problem with my foot, it wasn't a big problem, but as a Type one diabetic, any issue with my feet is a big problem. The feet, along with kidneys and eyes are the first things to be damaged with type one. The glucose in the blood 'scratches' the veins, arteries and capillaries and then scar tissue forms as it heals. The scar tissues cause blockages meaning that blood can't get where it needs to go. The capillaries are tiny little tubes and they allow blood flow into the smallest spaces, and these are the ones that bear the brunt of the damage. The feet have many many capillaries so great care has to be taken not to cause additional damage. Secondly, I have a cold. We all have colds, but I also have type one. How much can having type one actually increase the risks from having a cold? Well quite a lot actually. When you are sick, stress hormones raise your sugar by triggering a release of glucose from your liver (good job body) The body also creates ketones. Ketones are an acid created when The body burns fat for fuel (a standard response with sickness to help your body fuel through the illness) The level of ketones i like to see is 0 although 0 - 0.6 is considered normal. If Malaika has ketones of over 3.0, I am advised to take her to A+E as it's a sign that something is going really wrong in her body. My ketones on Wednesday were 4.8 - 5. If Malaika had this cold, and had ketones that high, the chances are that she would be in intensive care Thankfully as an adult, who recognises different symptoms, I was able to make an appt with the GP and self manage as much as possible and I am now on the mend, but the cold has settled on my chest. This has caused huge blood glucose spikes, meaning I need more insulin. Exercising when you have a lot of insulin on board is not at all recommended as the energy use can happen too quickly resulting in dangerously low blood glucose. I am not giving up, but sadly this month has not gone to plan. Type One is a very serious illness, it can cause a cold to kill. I will continue with the year long plan of 10000km, but may have to rethink the monthly challenges as I took my health for granted when I was planning this, and completely forgot how harsh T1 diabetes is.

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