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Saturday, 30 September 2017
Labels:
diabetes,
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IFTTT,
JDRF,
missionfindacure,
type one
Friday, 29 September 2017
Wales challenge leaderboard. If you want to sign up for next year, please let me know. http://ift.tt/2gInRkB
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1000 mile challenge leaderboard. If you want to sign up for next year, please let me know. http://ift.tt/2gInRkB
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1000km challenge leaderboard. Congratulations to our newest finisher, Malaika!! If you want to sign up for next year, please let me know. http://ift.tt/2gInRkB
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Thursday, 28 September 2017
Despite not posting often (our family have been struck down by what most people call 'freshers flu') I am still slugging away at my miles and Malaika is incredibly close to finishing her 1000km in a year (I will do the leader boards asap to see where she is!) I am meant to be running Cardiff half this weekend, but I am running a temperature and I cannot stabilise my blood sugars, so I am not 100% running especially as the weather is forecasting rain. But I will sign up for another half for very soon if I don't make it, or maybe run the distance with the girls in the buggy so that the training isn't wasted 2017 total so far 7280.29km/10000km
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Thursday, 21 September 2017
2 years ago today Malaika's life changed forever and with it, our family changed forever. 2 weeks prior to this she had been taken to hospital with febrile convulsions from a virus, they tested her urine and it was full of sugar, a finger prick showed her blood glucose and it was 12mmol (normal is 4-6) nobody was concerned, her tiny body had just been through so much that it was common for things that shouldn't be raised to be raised. A test a couple of hours later showed that her levels had returned to normal and we were discharged with no concern Back to 2 years ago today. The day before, Malaika had taken part in a 6 mile sponsored walk, 6 miles is a long way for a 2 year old, but she managed it with a smile on her face (most of the way!) The following day she asked me for a drink, I gave her one and she swallowed it down without tasting it and before she had even finished she asked for another. I gave her another drink and remembered back the last few weeks how she had been wetting through her nappy a couple of times a night, how she had been more thirsty, how she was losing weight that I had put down to a growth spurt. She finished her drink and asked me again for another. She had drank close to 750ml in one sitting. It's then I realised I had to check her. Her blood glucose was HI, which means it was over 33mmol I went into a state of shock and thought back to the day before when I was encouraging her to walk 6 miles. Any diabetic will tell you how hard any sort of movement, let alone exercise is when your sugar is high. You have loads of energy (sugar) in your blood, but your body can't use it because the key to the cell door is missing (insulin) So you have all this energy floating around and cells that can't get any energy. Your body sucks the fluid from the cells to try and get rid of the sugar which is why you find diabetics get thirsty and urinate a lot more, this makes dehydration a massive factor When my sugar is high I am horrible to be around, I am grumpy, exhausted and feel sick. I certainly would not want to walk 6 miles. I started feeling guilty that I hadn't caught it sooner when the symptoms were so obviously there in hindsight and then I even considered not taking her to hospital, to let her have one final day of being 'normal', but that quickly passed as I remembered that at this moment she was slowly dying. A finger prick at the hospital confirmed the diagnosis of Type One Diabetes. We were made aware of JDRF immediately when we were given a bag with a little teddy called Rufus, he is diabetic too and was a massive help to Malaika in coming to terms with her finger 'pops' (blood glucose tests) and injections. Jump back to today. She has nearly died a number of times From a stomach bug, from swimming for too long, from feeding Amelie the food that she was meant to eat, from a failed cannula in the night, from the machines that keep her alive failing. But we keep fighting. We have had our tough times and Malaika often cries that she doesn't want to be diabetic. I tell her every time that I wish she wasn't diabetic, I wish there was a cure. Malaika once asked why I couldn't find a cure, I had taught her from a very young age that Mummy (and she, and anyone) can do anything they want if they put their minds to it. So I told her I would, I told her I would help find a cure. I promised her I would never stop until there is a cure. And that's where we are today. Malaika has been diabetic for 2 years and that is 2 years too long. Please consider a donation to JDRF, for me, for Malaika, for everyone who has to live with this horrible illness ♡ http://ift.tt/2gInRkB http://ift.tt/2yqr0PK
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Wednesday, 20 September 2017
Last long run before Cardiff Half. 12 long boring treadmill miles! If you think it's in any way impressive that I am running it, please consider bunging me a couple of quid in sponsorship. JDRF are committed to finding a cure for T1 diabetes which affects mine and Malaika's life dramatically, as well as Amelie who has to deal with 2 moody diabetics, my family who go through every up and down with us and the millions of people diagnosed and soon to be diagnosed http://ift.tt/2yqr0PK ♡
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Tuesday, 19 September 2017
Onesie run for JDRF. Join us virtually (wherever you are in the world) for a fun run to raise funds for JDRF, have fun being out and about in a onesie, raise awareness of T1 diabetes and get a silicone medal at the end! £5 entry (plus postage - I believe it's just a stamp, I'll have to check) Walk or run any distance you think your T1 can manage in November to mark World Diabetes Day 100% of profit from the medal donated to JDRF UK via http://ift.tt/2gFkUGb Spaces limited to 90. Medals posted upon receipt of payment so that you have the medals on the day to give to your superstar. Please consider raising sponsorship for JDRF as well, you can do this with sponsor forms or a just giving page! Thanks for your time! Please let me know if you want to sign up by sending an email with your email address and how many participants and I'll send an invoice.
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Friday, 15 September 2017
Malaika is poorly, a non decript virus that she has picked up somewhere. For non diabetic children the treatment would be Calpol, fluids and cuddles, for a diabetic child it sends the caregivers into overdrive. When Malaika is ill, her insulin injections become much less affective, she needs almost double the dose that she normally needs to stop her sugars going high. Malaika also goes into ketosis when she is poorly, the combination of high sugar and high ketones can lead to the fatal illness ketoacidosis in a number of hours. So I make sure that her insulin is administered at a much higher dose than usual, simple enough right? Right, Until the insulin suddenly decides to start working and her blood glucose starts spiralling downwards leading to life threatening low blood sugar. When Malaika is ill, She loses her appetite, trying to get a sick 4 year old to eat or drink glucose is close to impossible. I'm not being dramatic when I keep my children away from your sick kids, what can be a day or 2 of misery for your child could end my child's life. This is hard to write and I know I sound very matter of fact, but that is how I deal with diabetes. I can't have emotional responses to her illness or mine, because it's too important for me to be able to make critical medication dosing decisions any minute of any day I will not stop trying to fundraise for a cure until there is a cure. Please consider donating to JDRF UK via their website or via my just giving page http://ift.tt/2iyeDJM Please consider signing up for a challenge to raise funds for a cure and also spread awareness. http://ift.tt/2gInRkB Please help to find a cure so that Malaika's life isn't in danger from a common cold ♡
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Monday, 4 September 2017
Congratulations to all of the finishers we have had recently, just a heads up, if you are waiting for a medal to be delivered, fear not, they were safely delivered to my house this morning as I stupidly put my address as the delivery address! I will try again tomorrow! ♡♡
from Mission: Find a Cure http://ift.tt/2gGjJFM
via IFTTT
via IFTTT
Week 35 leaderboard for Wales challenge http://ift.tt/2gInRkB
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Week 35 leaderboard for KIlimanjaro challenge, congratulations Maj! http://ift.tt/2gInRkB
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Week 35 leaderboard for 1000 km challenge http://ift.tt/2gInRkB
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Week 35 leaderboard for 1000 mile challenge http://ift.tt/2gInRkB
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Wednesday, 30 August 2017
Congratulations Lina! If you want to virtually walk the Wales path and get a beautiful medal for your efforts, please visit http://ift.tt/2gInRkB and sign up
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So close Maj! Kilimanjaro leaderboard, if you want to take part and virtually climb the highest free standing mountain in the world, get in touch or sign up at http://ift.tt/2gInRkB
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1000 mile challengers Some finishers this week! Congratulations and thank you for all your miles! Don't forget to sign up to your next challenge http://ift.tt/2gInRkB
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Monday, 21 August 2017
Thursday, 17 August 2017
I'm not posting often, because I am exhausted!! I am averaging 20 miles a day at the moment and am well on track to finish 10000km by 31/12!! Here is my graph of current stats from Fitbit. Look at how few steps I did in January, I don't think I had worked out quite how many daily miles I needed to achieve to succeed! In February, I was injured and sick. I have never been one for wishing my life away, but I can't wait for 2018! haha I am trying to raise funds for JDRF UK by walk/running 10000km in 2017 http://ift.tt/2gFkUGb
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Wales leaderboard Still time to take part, take as long as you want, join as part of a team or individually. http://ift.tt/2gInRkB
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Kilimanjaro leaderboard Still time to take part, take as long as you want, join as part of a team or individually. http://ift.tt/2gInRkB
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1000 mile leaderboard Still time to take part, take as long as you want, join as part of a team or individually. http://ift.tt/2gInRkB
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1000km leaderboard Still time to take part, take as long as you want, join as part of a team or individually. http://ift.tt/2gInRkB
via Mission: Find a Cure http://ift.tt/2v4MCOJ
Tuesday, 1 August 2017
Special offer! Join the 1000 mile challenge this year for just £5 (plus postage) Send me a message for an invoice. Use all currently run/walked miles to date in 2017 Message here or bethan@missionfindacure.com 100% of money raised to be donated to JDRF UK to help find a cure for T1 diabetes
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Sunday, 30 July 2017
Huge huge congratulations to our first 1000 mile challenge finisher! Thank you for all your support Sarah! xx
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My first pair of trail running shoes. Starting to get my kit together and head in the game for next year's Race to the Stones It's not til July, but it will be my first ever ultra so I am using the year to mentally prepare for a 100km race! #MilesForMalaika #MightierThanTypeOne #MissionFindACure
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Friday, 28 July 2017
4 days left in July. 35.5 miles left until I hit 1000km this month! I am going to continue doing the mileage I am to try and take the pressure off the rest of the year!
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Friday, 21 July 2017
Over 24 hours of fighting and fighting and fighting a high. Malaika had less than 10g carbs in 24 hours but I could NOT get her sugars down. No ketones (which you get if there is no insulin present) so I just didn't know what was happening, I gave correction injection after correction injection and did everything I was meant to. Turns out it was a dodgy batch of insulin, we are now close to being in range after a very long day Even when you do everything right, it's sometimes still not enough. #WeNeedaCure http://ift.tt/2gFkUGb
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Tuesday, 18 July 2017
Thank you to everyone who has taken part so far. Whether you walked 1km or 1000 miles your help in raising funds and raising awareness of Type one has been invaluable. Please consider joining a challenge, as long as you can walk, skip, swim or cycle 1km, you can take part. http://ift.tt/2gInRkB
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